Data custodian need to give in principle approval for the project to proceed before an integrating authority is appointed. The choice of integrating authority will be based on a consultative process led by the data custodians taking into account any preferences of the data users. Ensuring that the data integration project takes into account the public benefit which can be derived from the use of integrated datasets.ĥ.An example is the need for ethics committee approval for projects using human research data (e.g., clinical trials, population health research and health services data). The existence of any data protocols governing access to, and the use of, datasets. Agency-specific legislation will also need to be considered. This may include an assessment against the Commonwealth Privacy Act and equivalent state/territory or other legislation. Privacy impacts relating to the use and disclosure of personal information or business data.Existing legislation which enables the release of, and access to, data by integrating authorities (i.e., legislation which applies to data custodians and integrating authorities).The figure shows the key factors which data custodians need to consider before releasing data to an integrating authority, namely: Figure 1 is a stylised representation of the interactions between data custodians, integrating authorities, and data users around data integration arrangements that involve the use of at least one Commonwealth dataset for statistical and research purposes. These may be from the same organisation or from separate institutions, will include at least one Commonwealth agency, and may include state/territory agencies and non-government organisations such as universities and private sector businesses.Ĭommonwealth data integration arrangementsĤ. For any given data integration project (or family of projects) involving Commonwealth data, there may be one or more data custodians (Endnote 1). The role of data custodians may also extend to producing source data, in addition to their role as a holder of datasets.ģ. Data custodians collect and hold information on behalf of a data provider (defined as an individual, household, business or other organisation which supplies data either for statistical or administrative purposes). Data custodians are agencies responsible for managing the use, disclosure and protection of source data used in a statistical data integration project. This paper identifies the rights, responsibilities and roles of data custodians relative to those of the other key participants in data integration projects involving Commonwealth data for statistical and research purposes, namely integrating authorities and users of integrated datasets.
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